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Social workers threatened to have Melody removed from her parents’ care when they began court proceedings but backtracked after the case was raised in the press.

The family is being represented by top lawyer Charles Da Silva, who acted for the family of 11-month-old Charlie Gard – the tot who died after his parents lost a legal wrangle over his care.

Karina said:

I’d rather Melody had one more year filled with happiness than five years of pain.

It’s only now we realise how few rights we have as parents but we won’t give up. Melody can’t speak, so we are her voice.

As she screams, she points to her stomach, as if to say: ‘Why aren’t you helping me, mum’?

The family is being represented by top lawyer Charles Da Silva, who acted for the family of 11-month-old Charlie Gard, the young boy who died after his parents lost a legal wrangle over his care.

Meanwhile, Melody is still managing to smile through her brave battle.

King’s College Hospital NHS Foundation Trust is unable to comment on Melody’s case but says ‘all decisions taken are in our patients’ best interests’.

Our thoughts are with the family at this difficult time.